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Family Engagement Lead

Can be completed remotely


About the Role

Meagan Bebenek Foundation a registered Canadian charity focused on creating a world where no children suffer from brain tumours. We are seeking a Family Engagement Lead in a volunteer capacity to work alongside our Director of Operations to increase awareness about the organization’s mission, vision and values with families affected by paediatric brain tumours.

The successful candidate will be a compassionate individual with excellent communication skills and a proven ability to build relationships. They will be familiar with the challenges that a paediatric brain tumour diagnosis present to a family from their lived experience.

This is an exciting opportunity for a cancer survivor or family member to share their personal journey and experience to help shape programming and the strategic direction of the organization.


Tasks & Responsibilities: 

  • Represent the family/patient viewpoint within the MBF Management Team (monthly meetings)

  • Support the creation of an overall stakeholder engagement plan

  • Participate in strategic planning sessions (quarterly) ensuring the organization’s mission and vision remain aligned with the needs of the community we support

  • Co-chair the family council with semi-annual meetings 

  • Help create and maintain a family contact database

  • Provide input into organizational collateral 

  • Participate in the creation of a regular newsletter keeping families engaged and connected to the organization

  • Work in in partnership with the Communications Coordinator to collect patient & family stories and develop digital content that celebrates their courage and determination

Time Commitment:

  • 5 to 8 hours / month

Interested candidates should send their resume to

About the Company

Since 2001 Meagan Bebenek Foundation (previously Meagan’s HUG) has raised over $6 million for ground-breaking research and is having global impact on the care of and outcomes for young brain tumour patients and families around the world. Meagan Bebenek Foundation is a registered Canadian charity focused on creating a world where no children suffer from brain tumours.

Volunteers are critical to the success of MBF. When you volunteer with MBF you join an enthusiastic team dedicated to making a meaningful difference to the lives of children and families affected by paediatric brain tumours. You have an opportunity to give back to the community, share and develop your talents, learn new skills and meet new people in a supportive, inclusive and welcoming environment.

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